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My sister Shannon…

Posted by on Aug 22nd, 2013 in Blog | 18 comments

My sister Shannon…

We were born exactly 25 months apart to the day, January 12, 1965 and February 12, 1967. Being sick has been hard on everyone, but I think it’s been the hardest on one of my favorite people in the world, my sister, Shannon. She and I are very different. I am the extrovert and she is the introvert. I am cavalier, and Shannon is humble. I have always been the front man and she has always had my back. I often leap into things blindly without thinking through the repercussions, and Shannon is a plodder, a planner, thinks of the consequences. ...

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It was a good day…

Posted by on Aug 5th, 2013 in Blog | 31 comments

It was a good day…

We made it. Birthday party number 6 is in the books. Two weeks ago, a still 5 year old precious little angel named Charlotte Hope politely pleaded and prayed that I would be able to attend. I wasn’t going to miss this for the world. These last two weeks have been all about that. I made it. It was perfect. And guess what I found? Remember the LP (long playing) record?  Remember it’s little cousin the 45? On iTunes I stumbled upon the first 45 I ever had. “Rock me Gently,” by Andy Kim. I still love this song. No idea why. The lyrics are...

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Fathers and daughters…

Posted by on Jul 19th, 2013 in Blog | 8 comments

Fathers and daughters…

I’ve been working on my book these last few weeks, which has really got me thinking as to what it should look like, what it should say, what emotions it should evoke, etc. I’ve always wanted it to be for and all about Charlotte. Knowing that I probably will not be around for a good part of her life makes me sad. But it also opens up the opportunity I have to be there for her in words. I want the book to provide a snapshot of what life was like for us as a struggling family during my illness.  And I also want it to be something she can...

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Building a good team…

Posted by on Jul 2nd, 2013 in Blog | 36 comments

Building a good team…

Throughout my cancer fight, I have had to build a team of people, each with different roles, but sharing the same philosophy: to win. In building this team, I had to select people that were like me and wanted to be aggressive. My team is all like-minded and driven by the same goal: to pull out all of the stops and ultimately win. Last week, I had to fire my first team-member. She was a new member, a nurse that was assigned to my case by the home health care company that is helping me recover. She was a very nice lady, but I learned quickly...

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Don’t be a hero…

Posted by on Jun 14th, 2013 in Blog | 44 comments

Don’t be a hero…

About 9 weeks ago, I was sitting “more or less” in this same spot.  At home, on oxygen, and trying to bring myself back to life.  How did I get myself in the same position you might ask?  It’s a legitimate question and a good segue into one of my parables: “Don’t be hero.” This time I Iistened to myself, and practiced what I preached, and so far it is doing the trick. Last Monday, June 3rd, my body gave out.  The perfect storm for a setback was created – the physical trauma I had previously experienced mixed with the...

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Choose your friends wisely…

Posted by on May 25th, 2013 in Blog | 26 comments

Choose your friends wisely…

This is one of the most important decisions you will ever make. You will call on them for things that you will not know until they happen, through sickness and health, good times and bad. How do you know if you have chosen your friends well?  You will know when life gets rough. I have chosen well. As many of you know, I had a CT scan of my lungs, neck, and abdomen on Wednesday May 15th. The results of this scan were extremely important (not that they all aren’t), but these results were hopefully going to show us that the pace of growth in...

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My special friend…

Posted by on May 11th, 2013 in Blog | 20 comments

My special friend…

Charlotte met two special friends in pre-school. They are twins. Their names are Aurya and Rhea. For Kindergarten, they had to go to different schools, so maintaining their friendships was going to take some effort. I adore those two sweet girls. And I adore their parents, Sommana and Tanya. Fortunately we have been able to get together enough to maintain our family relationship. It is one I truly value. So now you have the context. About a month ago, in the middle of my malaise, I received an email telling me that Rhea chose me as a person...

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20 Minutes…

Posted by on May 5th, 2013 in Blog | 19 comments

20 Minutes…

What did you do with it today? I took a walk on a glorious day. I did it without oxygen. I had a lot on my mind. I really felt the warm sunshine dig into my shoulders. It made me think of Vitamin D, and that everyone should take it. I made sure I felt each breath. I thought about my cancer, and the fact that I have another scan coming up in 12 days. I cried about that. I thought about how lucky I am that my parents were back at home to take care of me. I cried about that too. I’ve been crying a lot more lately, not sure why. I want to live,...

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Petey, Papi, Panda, and Posey

Posted by on Apr 23rd, 2013 in Blog | 2 comments

Petey, Papi, Panda, and Posey

What the heck does all of this mean? It’s about teaching your kids about what you love and sharing the joy of the experience together. In my case, I’ve been teaching and sharing my love of baseball with Charlotte. We are having so much fun with it. We have picked our favorite teams, the Giants and the Red Sox, and we have picked our favorite players: Petey (Dustin Pedroia), Papi (David Ortiz), Panda (Pablo Sandoval) and Posey (Buster Posey).  We have their baseball cards. We high five them each morning, and wish them luck. We have decided...

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Let’s roll…

Posted by on Apr 10th, 2013 in Blog | 16 comments

Let’s roll…

The famous words of Todd Beamer, the Flight 93 hero, resonate with me at this moment in time. I’m ready to roll on a lot of fronts. First of all, I’m feeling much better after two weeks of R and R, and the TLC of my amazing caregivers (Jennie and Grams). Words cannot even express what I receive; the term “angels of mercy” comes close. Once again, my family has lifted me up from the canvas. I am almost off of the oxygen, which is so very important to me and my overall attitude and psyche. I hate it. It makes me feel weak (which is...

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